Rare-X

Patients facing rare medical conditions that are undiagnosed can face specific challenges in obtaining adequate care and support systems. Undiagnosed patients cover those who are not still diagnosed" since their relevant medical specialist has not been associated with them, as well as patients who have a condition not previously described and for whom there is still no diagnostic test available. In this case, without any research, you can't make any improvements and find cures. Data collection allows many researchers and doctors to learn about the trends and determine what is right or what is not. So, in this field, data collection and gathering hold vital roles. They can be used further and help in extremely rare genetic disorders .  The main goal of the Database of Undiagnosed Rare Diseases is to carry out an experimentally planned and organized study of a natural history that will lead to the most detailed understanding over time of rare undiagnosed diseases and the ins